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What is 1p36 Deletion Syndrome?

 

1p36 Deletion Syndrome is a chromosome disorder that can be characterized by moderate to severe intellectual disability, delayed growth, limited speech ability and distinct facial features. It is estimated that 1p36 Deletion Syndrome occurs in one in every 5,000 to 10,000 births though many individuals still go undiagnosed. Though many people have never heard of 1p36 Deletion Syndrome, it is the one of the most common chromosome deletions. Learn More

Entries in Calendars (1)

Thursday
Nov172011

Votes, Calendars and Deadlines..Oh My!

Time is flying by!  Thanksgiving is next week and Christmas is just around the corner.  We want to make sure that a couple very important deadlines don't whoosh past without you knowing.

Deadline #1

Voting ends on November 22nd (thats next Tuesday!) in Chase Community Giving on Facebook.  That means we have less than five days to make sure that 1p36 DSA is in the top 100 Charities to win part of over 3 million dollars.  We need all the votes we can get.  If 1p36 DSA is in the top 100, we will win $25,000!  So please go follow the link below and vote and encourage your friends and family to vote as well.  The money would go a long way in helping children and adults with 1p36 Deletion Syndrome.

Click here to go to 1p36 DSA's page on Chase Community Giving.

(You'll need to log into your Facebook Account)

Then click "LIKE" Chase Community Giving in the top lefthand corner.

Then click "VOTE & SHARE".    That is all it takes!  

 

Deadline #2

Monday November 21st is the last day to get your orders in for the  2012 1p36 Deletion Support & Awarness Calendar.  The calendars will be printed after the deadline and shipped around December 5th.  Just in time for Christmas!

The calendar can brighten up any office. Even messy ones!

Each calendar is $20 with all profits going to 1p36 Deletion Support & Awareness.  

The calendar is spiral bound, 8 1/2" x 11" when closed and 11"x17" when open.  Every month features 6 photos of beautiful individuals with 1p36 Deletion Syndrome.

 

To place your order through Paypal CLICK HERE.  (*Additional cost of orders outside the US, please see below.) 

If you would prefer to order by check, please make the check out to 1p36 Deletion Support & Awareness.  (No Cash Please)  Mail to 1p36 Deletion Support & Awareness, Attn: Karen Bess, 48 Cornfield Lane, Warwick NY 10990 Include a note regarding how many calendars you are ordering and the address where you would like them sent.  The check must be recieved by November 21st.

*There will be an additional charge for shipping outside the US so please email c.daggett@1p36dsa.org before placing your order.  Include your address and how many calendars you are ordering.  The additional shipping cost will be calculated and emailed to you so that you can include that amount in your payment.